I have been absent from the world of blogging for a few months. Some of it is just simply from a lack of time due to the holidays and work becoming busier than ever. The last few weeks have been purposeful though as I have been (and continue to at this time) sorting through the emotions that have ensued since our 19 week ultrasound.
That is right, we had an ultrasound that showed number two is officially a little girl! Liam is going to have a little sister to torture 🙂
The day of the ultrasound my husband, Liam, and I met my parents at the doctor’s office. My parents stayed long enough to hear that they were going to have a granddaughter, and then headed back out to the waiting room play area while the little girl continued her second photo shoot (we had a dating ultrasound at 9 weeks). She was being quite active at that point in time and I figured that was causing things to take longer than they had with Liam. Now I suspect something different. As the sonographer finished up she made one quick comment about the membranes not being fused and then handed us our pictures and showed us to our room for the checkup I had scheduled after the ultrasound. There we waited…. and waited….. and kept ourselves busy looking over the pictures and discussing what we thought life would be like with a little girl…. and waited some more. I suggested that maybe an emergency had occurred and that is why they were running late. I never suspected that the reason they were running late was the quick comment at the end of the ultrasound, though it had apparently crossed my husbands mind as he asked what it meant, to which I replied that I had no clue, membranes not fusing was not something I could recall being discussed in nursing school.
Thirty minutes later our nurse midwife walked into the room apologizing for being late. The reason, she explained was because she had to make a phone call to the high risk pregnancy specialist in the area regarding the ultrasound. Inside the uterus there are two membranes, the amnion and chorion, that typically fuse by week 17, mine have not at week 19. It is extremely rare for this to happen. So rare that no one (including the high risk specialist) have ever seen it. Unfortunately with rarity and lack of study comes a lack of answers. My nurse practitioner was unable to provide me with much to go on other than to:
1. Not stress out about it too much.
2. Take it as easy as I could
3. Prepare for a follow-up ultrasound at 27 or 28 weeks and then frequent trips to the high risk specialist after that.
Being the person that I am I (of course) could not tolerate the lack of answers as to what exactly the prognosis was for my daughter and myself, and so I have spent the last few weeks scouring medical journals searching for answers. I consider myself to be fairly adept at research having spent over a decade fine tuning my research skills while obtaining various college degrees. For the first time ever my searches were leading to mostly dead ends. After several weeks I found a grand total of one research study that focused on this condition in a medical journal. One single study to supply me with a prognosis and potential recommendations.
The prognosis itself isn’t great, though it could certainly be worse If our little girl can make it through the next few weeks thing will look a little brighter, but it seems the major danger with the membranes not fusing is that they can get tangled around the umbilical cord cutting off the babies oxygen supply. The lifting restriction and directions to stop and rest every couple of hours when at work are so very important for me to follow, and are constantly on my mind. Drinking enough water to keep my fluid levels up is also extremely important. I breathe a sigh of relief every time she kicks. After 28 weeks the trips to the high risk specialist will be to make sure she is still living in an environment where she can thrive and grow. There is a risk of IUGR (intrauterine growth restriction) which can result in developmental delays, and she will almost certainly be a smaller baby. It seems that every person that has been through this (the handful I could find across the country) has been put on bed rest or modified bed rest by 35 weeks…. so I am mentally preparing myself for that as well.
My husband and I are focused on staying positive. At the same time we are preparing a room and sorting clothes for a baby who might not make it home. I am keeping myself as busy as I can to continue to help distract myself from the reality of the situation while trying to enjoy every single moment I have with our little girl. She is already a feisty little one who kicks much harder than her brother did at 23 weeks, especially when her puppy brothers start barking! We have decided to name her Catriona Dawn…. Liam can’t quite get that out, but calls her “Ona” for short and frequently gives her “kisses” through Momma’s belly. Catriona is already loved immensely and we truly hope that with precautions and my general state of healthfulness (otherwise) we will beat the 50/50 odds and enjoy a happy healthy little girl.
Without further ado…. the star of the show 🙂
And a picture of the bump at 20 weeks 🙂
Are you interested in learning more about Amnion-Chorion separation? The most helpful website that I was able to find with recommendations was from a San Diego practitioner and can be found here.
Do you enjoy reading research papers as much as I do? You too can enjoy the only research I was able to find on the subject here. You will note that I did not mention the increased chance for Trisomy 21 during my discussion. I do not feel that the risk is all that much higher than it would have been without the amnion chorion separation as our scan was normal and the other testing we have had done has not (yet) come back abnormal. Keep in mind that I am not an expert in this field, the area of medicine that I practice in is geriatrics.
It seems that diagnosis of Amnion-Chorion separation is increasing thanks to improvements in ultrasound technology, hopefully the odds for successful outcomes will increase with the increase in diagnosis. My hope for the future for women who receive this diagnosis is that the recommendations for Mom during the pregnancy can be fine tuned and more concrete 🙂